Searchable abstracts of presentations at key conferences in endocrinology

ea0099p210 | Endocrine-Related Cancer | ECE2024

The lived experience of people with adrenocortical carcinoma

Yeoh Phillip , Czuber-Douchan Wladzia , Sturt Jackie

Background: Adrenocortical carcinoma (ACC) is a rare and aggressive cancer of adrenal glands with an incidence worldwide around 0.7–2 cases per million per year in adult populations. The median age at diagnosis is 56 years old, with women and white Caucasians being more frequently affected. Overall median survival rate can be as low as 17 months with 5-year survival rate around 31.2%. Our systematic review identified the lack of qualitative study on the experiences of ACC...

ea0081ep3 | Adrenal and Cardiovascular Endocrinology | ECE2022

Impact of adrenocortical carcinoma and associated adrenal insufficiency on patient wellbeing – a systematic review

Yeoh Phillip , Czuber-Dochan Wladyslawa , Aylwin Simon , Sturt Jackie

Context: Adrenocortical carcinoma is a rare cancer with an annual incidence of 0.7-2 cases per million population and 5-year survival of 31.2%. Adrenal insufficiency is a common and life shortening complication of ACC and little is understood about how it impacts on patients.Objective: To understand patientsÂ’ experience of the condition, its treatment, care process, impact of AI on ACC wellbeing, self-care needs and support.De...